Silence Killed the Dinosaurs by Lucy Grove-Jones
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  • “Be Positive”: As helpful as the Microsoft Paperclip

    And who wants to be like the Microsoft paperclip?

    I have chronic fatigue syndrome (cfs). One day in March last year I came home from university placement feeling drowning-tired and crawled into bed expecting to sleep all weekend and be better by Monday. That was over a year ago, and I’m still waiting for that magical Monday.

    There’s a lot about having cfs that sucks (shocker). It sucks that on bad days I’m so tired after showering that I need to lie down. It sucks that my once-serviceable memory appears to have sprung a leak and I now have to make checklists to remember basic daily things. It sucks that reading is tiring, that writing is even more tiring, that if I draw too many blog-pictures in a day I start to feel sick.

    It sucks that my short-term goals had to be dramatically altered—from ‘start a career’ to ‘maintain a blog’, from ‘make money and save up for cool stuff’ to ‘maybe sweep the floor if you’re feeling up to it’.

    But what I hate the most is when people, usually after hearing about my altered goals, tell me that I shouldn’t think like this, that I’m being ‘too negative’ and I should ‘be positive’.

    I hate this for a whole bunch of reasons. One is that it’s actually normal to feel bad when bad things happen (and unhealthy to bottle that up). Another is simply because being told what to do and how to feel is a universally loathsome experience. But the main reason I hate it is because it twists the word ‘positive’ into something inverted and monstrous. And I think the reason I feel so strongly about it is that because before I got sick it was my view of ‘positive’ too.

    In this sense of ‘positive’ my recovery is not only certain and imminent but it will be the glorious restoration of my life. To ‘be positive’ I must stay focused on that and ignore this ugly illness business, which is ‘negative’.

    This version of ‘positive’ is saying that being sick is being broken. It says that I don’t have a life now and I shouldn’t think about and plan for this not-life.

    Here’s the thing. What if I never get better?

    You want to know something scary? Not everyone recovers from cfs. Most people—the vast majority of them, in fact—do improve, but some don’t, and there’s no way to tell where I fit into those statistics.

    So, hypothetically, what if I never get better?

    What if I never get better and the only things that matter to me are things I can’t do while I’m sick? What if I spend my entire life planning for when I get better rather than living now? To me, that doesn’t sound like a good mindset. That is not positive. I don’t want to die of old age 60 or 70 years from now bitter that my ‘proper’ life was stolen from me when I was 24.

    Don’t tell me that I’ll get my life back when I am better.

    Tell me that I have a life now and will have it until I die, whatever else happens.

    It won’t be the same life I would have had if I’d never become sick, I know that. Like I said, there’s a lot about having cfs that sucks. Sometimes that makes me sad. But sucky things happen in all lives to all people. Cfs might give me a different life with different sucky things, but it will not give me lesser one.

    And I’m not writing this to convince everyone else to rise up in chorus and say the things I want to hear. I’m writing it because maybe I can convince myself to.

    Because I will have a life. Just watch me.


    7 comments on “Be Positive”: As helpful as the Microsoft Paperclip

  • Odds and Ends #1

    I recently started using Pinterest. It has helped me discover many useful home improvement tips like ‘1000 crafty things to do with jars’, ‘How to build an entire house and all your furniture out of old pallets’ and ‘Use Vaseline to distress furniture’.

    That last one is real. Turns out I’ve been distressing my furniture wrong for years.

    Odds and Ends 1


    6 comments on Odds and Ends #1

  • How to Propose with Extra Dinosaurs

    “Where have you been these last few months? We’ve been suffering without regular posts filled with your sparkling wit and hilarious cartoons!”

    I know. I know, guys. I’m so sorry for abandoning you to several dull, me-less months. But I’ve had stuff on.

    “What important stuff could someone who has chronic fatigue syndrome, who barely leaves the house, who doesn’t have a job and who continually tells us she’s terrified of her social life possibly have on?” I hear you say. “I mean, you’re actually inventing a conversation with imaginary fans you don’t really have. Surely, that’s rock bottom.”

    … All true, but too harsh, guys.

    “Oh … We’re sorry.”

    Don’t worry about it. Let’s just say we’ve found the line and we’ll try not to cross it again.

    What stuff have I had on? Well, a couple of weeks ago I proposed to my partner.

    I wrote a Choose Your Own Adventure story about my partner arriving home to find me gone. The first page was clipped to the front door for him to find, and then he had to make choices which would lead him to other pages. I organised a number of perils for him to face, including dinosaurs, the Loch Ness Monster, a severed arm, a Furby* and a ballerina zombie. All pathways of the story converged on finding me and the last page, which had the final decision of the story: “Will you marry me?”

    I know. SO ROMANTIC. Who wouldn’t want to marry me after having their hand imaginarily bitten off by the spinosaurus that was hiding in the fridge? I should write romance novels. propose1 He said yes. Everything was downright magical for about a day until people started asking what our wedding plans were, and then I came to an awful realisation.

    I don’t like weddings.

    Oh, marriage I’m ok with. Sure, it’s not for everyone, but I think it can nice if you and your partner have an equal, supportive relationship. (In fact, I like the idea so much that I think more people should be able to get married; can I get a hell yeah for achieving marriage equality in Australia by the end of 2015?)

    But weddings? Weddings are big, expensive and uber stressful. Just thinking about weddings made my anxiety soar to graph-drawing levels. propose2 So we did a lot of thinking.

    There’s so much stuff in weddings that people think they need because that’s just how weddings are, but all you actually need to achieve with a wedding is a) get married, and optionally, b) celebrate with family and friends. Everything else is frosting. Which is fine if you like frosting (and are rich enough to pay for it), but we don’t (and aren’t).

    We want cake and celebration. We don’t want fuss and glitz, and under no circumstances will I be put on speaker-phone. But ultimately as long we’re married by the end of it I think we’ll call it a win.

    * If you don’t know what a Furby is, then you can read what Wikipedia has to say about them, but I find their account unsatisfactory as it completely ignores the saccharine, demonic horror of the toys. Think Funzo from the Simpsons. propose3


    13 comments on How to Propose with Extra Dinosaurs

  • Foibles (little crazy things)

    I parenthetically (in brackets) translate words in my head.

    Not all words. In fact, not even most words. Most words slip through my mind without leaving a ripple. This lulls me into the false sense of security that I know them well. In reality if I was put on the spot to concisely define a word like, say, ‘define’, I would have to make up a plausible distraction to escape the conversation (“did you know that the reason they can’t find the Lock Ness Monster is that it actually lives in my bath tub?”). So the words I know well my brain can’t easily explain, but the ones that feel unfamiliar and clunky are succinctly (briefly but aptly) described.

    Call it a foible (little crazy thing) of mine.

    Unfortunately, the awkward weirdness of my brain has a tendency to spread. It’s gone a whole extra step with ‘foible’ (little crazy thing). Whenever I read, write, think or say ‘foible’ (little crazy thing) I don’t just think the words ‘little crazy thing’ I think of a little crazy thing.

    I mean, literally (exactly as written) a little crazy thing.

    This guy, to be precise.

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    Which does at least stand up as a conceptual definition. I think using the word ‘foible’ (little crazy thing) makes the weakness or quirk out to be a cute little lap-dog monster. And sometimes they are. You could buy a rhinestone (cheap diamonds) collar for a-tendency-to-mention-dinosaurs and carry it around in a purse.

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    But, like dogs, foibles (little crazy things) aren’t all purse-sized. Some, like difficulty-talking-sensibly-in-front-of-groups-of-five-or-more-people, are more like those Great Danes with delusions of tininess who think they can, nay should, perch delicately in your lap.

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    We pretend anyway.

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    2 comments on Foibles (little crazy things)

  • The Importance of Basking in the Glory of Small Victories

    Recently* a friend told me something surprising.

    She said that I was impressive.

    It took me some time to soak this peculiar idea up. I am far too used to thinking of myself as the opposite, and so the idea that I might be considered ‘impressive’ was altogether too strange to be believed. I mean, yes, the website header does include a cartoon picture of me riding a Tyrannosaurus Rex which cuts a pretty impressive figure, but spoiler alert, that never actually happened. That’s just artistic license.

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    The cold, hard reality is that I’m 25 years old and I’m useless at most useful things, such as social interaction, basic time management, showing initiative, caring even slightly about money and physically doing things. I don’t even have a job or any prospect of getting one until my CFS improves.

    If you’re thinking that I’m being hard on myself and want to assure me that without CFS I would be a dinosaur-riding force to be reckoned with, then thank you, really, that’s very sweet. But you’re embarrassingly wrong. My maximum pre-CFS coping level just about covers going to the supermarket. That is to say, sometimes. Certainly if it isn’t peak shopping hour. Actually even then still maybe not, because when push comes to shove I can drink my tea without milk, and let’s be honest, the toilet paper situation is never really desperate until you’ve also run out of tissues.

    Being impressive is a nice idea though, and it grew on me. Around this time I also realised I hadn’t made a blog post in a while, so I made a list my achievements of the past few months and have taken the time to publicly gloat over them. Opportunities to rub victories into defeated opponents’ faces are thin on the ground when your general moral policy is not to be a jerk (disclaimer: general moral policy does not apply when playing Mario Kart). As such, I think it’s important to make the most of defeating non-person things like brain-fog or the knit-1-below stitch.

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    That’s right. A whole jumper. A whole jumper that looks acceptable and doesn’t have unplanned holes. It’s my first knitted jumper. Before this jumper, I had only ever knitted scarves, blankets and headbands. I started it last winter and finished it in summer, but I didn’t think my victory could be properly relished without wearing it, at least for a day.

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    A popular way for movies and novels to illustrate a significant change in a person’s life is to show that person in two similar events before and after the change. It seems like a fun and effective trick, and I simply can’t resist giving it a try.

    For me, the beginning of 2015 was something like…

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    … which may seem bad, but it’s actually really good because the beginning of 2014 was more like …

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    … as it occurred just over 24 hours after I had major surgery to remove a begin but ridiculously enormous ovarian cyst (seriously, it was 20cms across and weighed 1.5kg).

    So I’m counting that as a general life improvement to feel good about.

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    For some reason I tend to not count university as an achievement. I’m not really sure why.

    I say things like: “I’m useless. I haven’t done anything in the last few years.”

    And my friends give me funny looks and say: “Didn’t you get two degrees? I’m sure I remember you whinging about assignments, pulling all-nighters and babbling about the Dewey decimal system while sobbing uncontrollably. If you need reminding I can produce photographic evidence of you tossing a mortarboard in the air with apparent glee.”

    So this time I will count it.

    In November I completed my final semester of my library and information management graduate diploma. After becoming unwell, I had to study part-time and externally. It was still hard. The effort I had to put into coursework gave me near-constant brain fog and made me crash all the time. I was accustomed to getting good grades, and it was soul-crushing to understand what was involved in an assignment but have my brain and health fail me so utterly that I still could not meet all the requirements. I drifted in a never-ending sea of confusion, vice-like headaches and exhaustion.

    My grades dropped.

    But I passed.

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    I posted last year that due to ridiculous levels of brain fog brought on by university I found myself incapable of reading Moby Dick. At the time I had to accept my limitations and stick with re-reading Harry Potter instead.

    But know I have finished university and I have more freedom in what I read. I don’t have to throw every last ounce of energy at textbooks and essays. Now I can once again direct my energy toward dense, wordy books.

    So I went straight back to Moby Dick and totally crushed it.

    … in the mature, intelligent, literary sense of ‘totally crushed it.’

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    If you have some victories to bask in the glory of, please do so in the comment section! It will make you feel warm and glowy, and who doesn’t like feeling warm and glowy?

    * When I started writing this ‘recently’ was a valid word choice, but at the time of posting ‘a couple of months ago’ would be more accurate. I kept getting distracted and not finishing this post, primarily because it doesn’t have very many good jokes and I find jokes motivating.


    12 comments on The Importance of Basking in the Glory of Small Victories

  • The Girl Who Built the Tree-House

    It’s easy to let silence take over part of your life and to forget the good things about yourself. It’s easy to twist your mind and see yourself from a bad angle, to believe that acts of anger or rebellion are always bad things, to submit and tell yourself it’s only this one time. And if that’s easy, then it’s easy for it to spread, like metastasising cancer, from one part of your life to others, until it’s everything.

    It’s hard to be sure exactly where it started. It’s hard to recover.

    This, just like all my stories, is about who I am. It is for me, although it is available to anyone. It is a rebellion. It is a reminder, because I forgot.

    When I was twelve I built myself a tree-house.

    I had pestered my parents for one for years before finally accepting that an adult was not going to build it for me. Fair play to the adults; my dad had already built me and my two younger siblings a cubby-house fort.

    It was a very good fort. We could climb up its walls, through its windows, onto its roof. We weren’t supposed to do any of these things, of course. The only parentally sanctioned fort-climbing was up the entrance ladder. The roof was firmly and repeatedly deemed out of bounds and we were reminded often that the railing around the balcony was for fall-prevention, rather than a climbing aid. We climbed it anyway. We used it to fight pretend wars, and it was very difficult to invade the fort by climbing politely up the ladder.

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    Other than that it was obvious we would find a way for it to kill us, there were two problems with the fort. One problem was that there was only one fort. What was the use of one fort? You need two forts, at least, for a proper war. If you had three you could even forge alliances and have betrayals.

    The other problem was that I had watched it being built, and I had enjoyed this more than playing on it. I wanted to build more things. Lots of things. Dangerous things. Our yard had stacks of bricks, piles of corrugated iron, heaps of unused wooden planks, mounds of excess pavers. And we knew Dad kept his tools in the shed.

    So my brother built his own crossbow which shot chopsticks-turned-arrows with goose-feather flights. It was very effective. We never had chopsticks in the kitchen drawers after that, but they were all over the garden. We built a small table to go in our fort as well as a heavy door to defend it. Our family home got an extension, and a few weeks later so did our fort. We sunk new foundations and built ourselves a dungeon.

    We built so much that after a few years of this we started to run out of supplies, particularly nails. The First Great Nail Shortage ended the Christmas after Dad discovered all his nails were disappearing from his shed at rate suspiciously similar to our garden construction boom. We realised that, judging from his irritation and how much he complained, he must really like having nails. We understood. We liked having nails too. We’d found lots of things we could make with them, and when we’d run out of them we’d learned that screws made terrible replacements; they’re so difficult to hammer in.

    So the Christmas present we got him that year was perhaps not entirely altruistic, but then, we really did think he would like it too.

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    I was confused. He only seemed to pretend enthusiasm for the nails, when he had told us time and time again how badly he wanted them. Also, Mum seemed very amused, even though she was the one who approved the present idea and drove us to the hardware store—although when I came to think about it I remembered she had laughed then too.

    The new box of nails did not last long, and we were soon plunged into the Second Great Nail Shortage. The Second Great Nail Shortage lasted years and years. In fact, as far as I know, it’s still going.

    Nevertheless, other minor forts began springing up all over the garden so that we might have proper wars. One made clever use of existing materials and junk, another was made of corrugated iron and held together with twisty ties.

    But I wasn’t satisfied. I wanted a tree-house fort. As a child I loved climbing trees and was good at it. I hardly ever hurt myself, especially if you don’t count the three times I broke my arm before the age of seven. But those incidents involved a car, an arm chair and a fitness trampoline respectively, never trees.

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    So I think I had every right to consider myself an excellent tree-climber in need of a tree-house.

    In the end I decided to build the tree-house myself. And I had to do it without nails. Or screws. Or rope. Or heavy-duty tuna fishing line. Or any of the other things Dad used to have that we had completely used up.

    But I still built it.

    I used the wooden planks, which were round logs cut down the middle. I wedged two of them in the branches of a tree, roughly parallel, and then laid out more planks across them to create a platform. I dreamed of nails and rope, of bolts and drills, but I didn’t have those things so none of the planks were secured with anything. I had planned well though. The planks were quite heavy and there was a good deal of overhang on each side of the support beams which made it difficult for the planks to work themselves free. As long as I didn’t step on the overhang it was a relatively safe tree-house. And it was all mine and only mine, as I had built it by myself. Without even nails.

    The ‘without even nails’ factor quickly became a big deal for my parents. It was dangerous. It would fall to pieces. They didn’t want me to play in it.

    I ignored them. I was twelve and was used to parents and other responsible adults disallowing anything remotely fun, like spinning on office chairs, sliding in socks on wooden floors, climbing on the roof or setting the trampoline on its side and trying to climb up it as it falls over.

    And my tree-house didn’t fall down. So I built a smaller, higher platform as a second story and installed a dog ramp.

    I cannot claim the genius of the dog ramp as my own. Dad had come up with the idea for our first fort. He made a ramp out of a suitable plank of wood and he trained out little dog to run up it. Our dog learned quickly and soon understood how to do it without any pointing or instruction. If he wanted to play with us in the fort, he only had to run up the ramp.

    I fixed up a similar ramp to my tree-house and trained our dog to climb it.

    The result was, I believe, a masterpiece.

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    I was fiercely proud of my tree-house, my space, and then I grew up and forgot to be. It’s easy to think that tree-houses aren’t real achievements. They don’t help you with school, for example. Only, really, it did. It may not have directly helped with my grades, but having my own space helped me get through at all. And even when I got older and stopped visiting it so often, being the girl who built it did help. Always.

    Always, at least, until I forgot.

    My tree-house was removed, plank by plank, and then the tree was cut down. And I forgot that I was the girl who built it, without nails or permission, who painted a flag for it, who loved it and defended it and who shared it with her dog.


    8 comments on The Girl Who Built the Tree-House

  • My First Near Death Experience

    I’ve been so bored. Thanks to chronic fatigue I live on my couch reading books, knitting and feeling terrible that I cannot participate in life the way I used to. So I’ve decided I should write something, something that I might have fun with that has nothing to do with my couch or my illness.

    I get blood noses a lot.

    This is an excellent topic, because whenever I draw a picture with blood-splatters I become ridiculously giggly and gleeful. I’m hoping that when they read this my friends and family won’t find this information disturbing and will instead shake their heads and think of it fondly as just another of my little quirks.

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    Please?

    The blood nose issue was most pronounced when I was in school, although I had a stressful time in my first year of uni and ended up with a significant blood nose every day for about a month. One of those days my nose bleed lightly all day, and by ten o’clock at night I was light-headed and woozy and probably should have sought medical attention but didn’t (eighteen-year-olds are, of course, known for making sensible decisions regarding personal safety). During this month, every time I tried to practice clarinet for my performance exam my nose turned into the elevator scene from The Shining movie.

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    Perhaps it was an omen. That exam did not go well.

    It could be very handy in school, though, and I managed to escape a number of lessons with tissues clamped to my face. My exits were most spectacular from classrooms that had run out of tissues. One time, I cupped my hands under my nose and they filled up and ran over before the teacher managed to usher me out the door. And then all I would have to do was exaggerate the time it took to stop, and voila! I could miss whole Maths lessons. Thank you, nose.

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    But it wasn’t all fun and games. My first blood nose was a horrifying experience. I was seven and, up until that day, I wasn’t aware that blood noses happened. The teacher sent me to the first aid room where I was instructed to clamp tissues to my nose, and then I was left by myself to wait for it to finish.

    It had nearly stopped when all hell broke loose. I felt something weird, warm and large in my nose. It came out into the tissue, a lumpy bloody mess.

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    I panicked.

    I knew what it must be. It was one of my internal organs. What else could it be? It was a slimy red lump and it came out from the inside of my body. Of course it was an organ. I was pretty sure it wasn’t my heart, but maybe it was my liver or a lung.

    (Okay, so I clearly wasn’t the sharpest child. Most of my childhood felt dreamlike and drifting, because I didn’t understand most of what was happening around me and had worryingly little inclination to figure it out. At the time of my first blood nose, I only had a vague understanding that people were made up of tubes and wobbly-bits, and probably no awareness at all before that day that I might be made up of tubes and wobbly-bits. All things considered, I did a pretty good job of deducing that it wasn’t my heart. Seven-year-old me should get some credit for that.)

    I sat for a minute, staring at it, and waited to drop dead.

    But I didn’t die. I was pleased, but mostly confused. Although unaware of the actual probabilities of expelling my liver out of my nostrils, I was fairly confident that a person couldn’t expect to stay alive for long if it happened.

    I began to worry about what adults would say when they returned to find me holding my liver in a bloody tissue in my hands. What if they said that having your liver drop out of your nose was always one hundred per cent fatal? I didn’t want to have to die to fit with the facts.

    Surely if no one ever found out that I should be dead then I would be fine.

    So I threw the damning tissue in the bin in the corner of the first aid room. But I was still worried that when someone emptied the bin they would find it and know. I was convinced that the minute my liver- or lung-less state was discovered I would drop dead. I half-emptied a tissue box into the bin on top of it, making sure it was covered.

    And then I went back to class and never told anyone about any of it.

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    For years (yes, years) I was plagued by the uneasy memory of the internal organ that fell out. I often wondered which one it was and in what ways its loss was affecting my health.

    And then one day I found out that blood noses sometimes make big, wobbly blood clots in your nostrils. I was almost disappointed.


    6 comments on My First Near Death Experience

  • Scarves for the Promotion of Elvish Welfare

    Call me invalid. I have had chronic fatigue syndrome for a little over six months now, so lately I haven’t been able to do a whole lot.

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    Initially it wasn’t so bad. That is to say, it always sucked, but at first it was a fresh situation and it was easy to be optimistic. Less so now. Apologies about this. I’ve been trying not to sulk, but it’s becoming difficult.

    The real problem is the brain fog. I’ve never been a very active person, so it hasn’t been too hard to limit physical exertion. Don’t get me wrong, it’s still been frustrating, inconvenient, limiting and an all round pain, but I’ve found I can do it and still have a life that makes me happy.

    I’m having a lot more trouble limiting cognitive exertion. The big part of this is that the university semester has just started up again, and although I only have one subject for my post-grad librarianship course, it’s a course on readers’ advisory, which means a lot of reading. Like, a lot. And reading is cognitive exertion. And cognitive exertion leads to brain fog. And brain fog is utterly debilitating.

    You know when you read a sentence and you understand every single word in that sentence individually but together it makes no sense, and you’re left wondering if the sentence actually is nonsense or if it’s just you missing something? Brain fog is like that, but with everything in the entire world and you know it’s you. When I have brain fog, I can’t put things together meaningfully. Things I’ve never thought of as cognitive activities have suddenly become challenging, or just downright impossible. These are things like remembering things, following a recipe and cleaning the detergent compartment of the washing machine.

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    This issue has been lurking for a while, but it has been manageable. I found that re-reading easy things is relatively gentle on my mind when I turned to Harry Potter after brain fog forced me to abandon Moby Dick. But now that I have to read academic writing and chew through a mountain of fiction for uni, I get brain fog most days.

    Lately I’ve been doing a lot of knitting and feeling guilty. The guilt is because I feel like I should do as many useful things as possible, because I can’t do many things and my partner has to pick up the slack. Expending energy on knitting means I’m less useful than my maximum useful output.

    But I’m knitting anyway, for a number of reasons.

    The first reason is that I like it, it doesn’t tire me out that much, and it neither brings on nor is impeded by brain fog.

    The second reason is that my knits are potential bribes for people I know in the real world to come and visit me. So people who are nice enough to come and talk to me might just get a beanie out of it.

    It was probably a mistake to put that information online. I have no illusions about my knitting ability, and the promise of free knits would be more of an incentive to stay away. In fact, I’ve never even knitted a beanie. I probably can’t. Scarves and headbands are more my level.

    The final reason I found in the pages of Harry Potter. And it is the most important, I think.

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    It means I’m free, even if it’s just a little bit. I produce something. I have something to show for the time I spend knitting. I might have to study from home, I might have to abandon hopes of getting job any time soon, I might struggle to read or write, I might lose my train of thought and forget simple words, I might not be able to walk more than a few hundred meters on a good day, but, damn it, I can still knit just as much and just as well as if I was healthy.

    And ok, Dobby the house-elf being freed by clothes and then wearing a crazy collection of knits as a symbol of his freedom is not exactly like knitting to rebel against the confines of illness, but whatever. It helps me.

    Initially, this is how I wanted to end this post:

    Tenuous connection or not, tomorrow I am going to put on all my scarves, yell “Dobby has no masters!”, dive back into Moby Dick and get my white whale.

    I was excited about that ending. Writing it made me feel like I could do anything, and I was determined that I would. But that’s not how this post ends, because of reality.

    Moby Dick would be hard through brain fog anyway, but I can’t even try chipping away at it while I have so much uni reading to prioritise. Maybe at the end of the semester I can try it again, but not now.

    Also, that ending was to have a picture of me, mummified in scarves, on a ship chasing a white whale though a storm. I tried to draw it and couldn’t. It was the shape of the ship and making it work with all the background shapes like waves and clouds and the whale. My mind was all foggy and I couldn’t draw.

    This was, to date, the most upsetting thing that chronic fatigue has done to me. My failure to clean the washing machine detergent compartment was defeating and degrading, but my ability to clean a washing machine detergent compartment has never been important to me as a person the way my ability to express myself through words and pictures has.

    So I couldn’t end like that, with a “screw it, I’ll do it all anyway!”, because I can’t. I can’t. I can knit scarves, but I can’t chase whales. I need to accept the things I can’t do and find victories in the things I can.

    I can’t guide that ship through the fog in my head.

    But I drew something else.

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    I’ll end with this.


    13 comments on Scarves for the Promotion of Elvish Welfare

  • Chronic Fatigue Adventures: Starting the Day

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    6 comments on Chronic Fatigue Adventures: Starting the Day

  • Fighting Multi-Headed Anxiety Monsters with the Power of Song

    But first a confession. I had a really hard time writing this, but an easy time drawing the pictures. In fact, I had more fun drawing these pictures than I did drawing myself being ripped apart by a bear (here), and I giggled continuously while doing that one. But the words were difficult. So this is how it turned out.

    There’s this awful thing that follows me around wherever I go. Other people can’t see it, but I can. It’s always there in some guise. Maybe it’s not bothering me right now, but I can see it lurking and I know that it can attack me whenever it wants.

    It’s called anxiety. Maybe you have your own version of this monster. A lot of people do.

    When it comes for me I’m usually the only one who notices, but you could tell if you were paying attention. When it happens, I experience:

    anxiety1

    anxiety2

    anxiety3

    And a few other things which aren’t as easy to draw. Plus, lists of three are neat and the racing heart one is definitely the punchline. So we’ll just skip over hot flushes, hyperventilation and feelings of impending doom. Lists of six suck.

    Actually … let’s quickly do a superficial interpretation of feelings of impending of doom, because that phrasing makes me giggle.

    anxiety4

    Lists of panic attack symptoms tend to refer to it this way. I’ve always found the terminology hilarious, but the experience is horrifying and (for me, anyway) it’s the worst part of a panic attack. But more detail later.

    Even with these symptoms, I can fight it. But it isn’t easy.

    anxiety5

    anxiety6

    anxiety7

    anxiety8

    If you cut off one head, another one grows back.

    I used to be very shy and afraid of talking to people. Over the last few years I have fought this and it has become much easier. I am still shy, but I can talk to strangers and I am able to make new friends. I cut off that head, and my multi-headed anxiety monster grew another.

    This one makes me afraid of being in crowds.

    anxiety9

    This is a problem. Basically, it makes it difficult to be anywhere other people also want to be, which covers most places worth going. So I rarely go to concerts, clubs or popular restaurants (especially the ones that won’t let you book but they’re always so busy that you have to queue to get a seat). And going Christmas shopping or travelling on public transport in peak hour are like personalised versions of burning in hell.

    … saying ‘personalised versions of burning in hell’ makes me want to go on a picture tangent. And I will. Because it’s my blog and I can if I want to.

    anxiety10

    And now back to anxiety.

    The place I have to fight the anxiety monster the most is the supermarket. Because you have to go all the time or you run out of food and toilet paper. And you need those.

    When I can, I try to go to the supermarket with my partner so that I don’t have to face it alone. It’s important that I do face it, because this is the best way to teach myself that there isn’t really anything to be afraid of. But of course I am afraid. I shuffle around, looking at my feet, trying to remain calm. It only takes one extra little thing for the monster to attack. A decision.

    anxiety11

    anxiety12

    anxiety13

    That’s all it takes for my brain to break.

    I remember when I was a kid riding my bike and the bike chain popped off. I spun the pedals, but they felt strange and loose and I couldn’t get any traction. The bike slowed down and wobbled. I tried pedalling faster and faster, but the bike didn’t respond.

    It’s like that. You put some information into your brain. It spins, but nothing comes out the other side. You’ve lost a brain-cog. So you spin it faster. And faster. People are looking at you. They expect you to say something. Your silence is getting weirder and weirder. The bike is wobbling.

    I always think the crash is going to go something like:

    anxiety14

    anxiety15

    But that’s never actually happened.

    And that’s feelings of impending doom. You feel like something’s broken, either in your mind or your body, and you’re about to die or go mad or experience other doom-like fates. And, sure, it may not be everyone’s vision of doom, but screaming in public and having my head explode feels pretty doom-y to me.

    anxiety16

    Mostly, I’m proud to say, I cope. I may not see many concerts, but I catch public transport and buy my friends and family gifts for Christmas. I buy food. I keep myself alive and my home in stock of toilet paper.

    Mostly.

    There are days when it’s too much and it feels like there’s no way I can avoid the doom (the one where I scream in public and my head explodes). On those days I don’t go to the supermarket. I can live off my emergency stash of two-minute noodles and resort to using tissues for a while, but usually my partner is kind enough to go shopping for me. I stay home alone.

    The monster has a head for this too. I start to worry about failing, about not coping, about being worthless. All the predatory pieces of my mind come out to feed. It’s the hardest thing to fight off.

    And then one day I was home alone, unable to face the supermarket and my impending doom. I started the old cycle of worry … and then I stopped. Instead, I started drawing tenuous parallels between myself and Disney characters who find it hard to function in society due to a crippling fear of people. And before I knew it …

    Change 2

    anxiety18

    Change

    anxiety20

    anxiety21

    anxiety22

    So maybe the moral of this story is that when life gives you lemons, sing to those lemons about how awesome and magical you are. And if it still bothers you afterwards that they’re lemons and not lemonade then at least you have an ice castle to be bothered in.

    Or maybe that’s nonsense and the moral is just that anxiety is hard and it’s hard every single day, but you can still do life.


    4 comments on Fighting Multi-Headed Anxiety Monsters with the Power of Song

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